No parent should experience the pain of losing a child to SIDS, or worry their child may be next.

Resources

The causes of SIDS are unknown, but following these guidelines may help reduce babies' risks.

  1. Babies need to sleep on their backs.

  2. Babies should sleep in a crib with a firm mattress and no pillows, blankets, or stuffed animals.

  3. Babies should sleep in the same room with their parents, but never in the same bed.

  4. Do not feed babies in bed.

  5. Do not smoke around babies.

  6. Breastfeeding reduces the risk of SIDS.

  7. Make sure that babies do not get too warm.

FAMILY SUPPORT

Seattle Children’s Journey Program

Parent Support of Puget Sound

Tears Foundation

Compassionate Friends

AWARENESS and EDUCATION

SUDC Foundation

Inland NW SIDS/SUID Foundation

Cribs for Kids

SIDS Network

Mickey’s For Bronson

First Candle

Baby 1st Network

Charlie’s Kids Foundation

RESEARCH

Sudden Infant Death Research Study

A genetic database for infants who have passed away suddenly and unexpectedly

Researchers at Seattle Children’s Research Institute are creating a genetic database to search for key genes or mutations that could explain why some infants pass away from SIDS (sudden infant death syndrome) or SUID (sudden unexpected infant death). The research team is led by Dr. Nino Ramirez, Director for the Center of Integrated Brain Research, and Dr. Ghayda Mirzaa, Assistant Professor of Genetic Medicine. If you joined this study, we would request tissue and/or blood samples and medical records from the deceased child on your behalf as well as saliva cheek swabs from biological family members, such as the child’s mother and father. We would then perform genetic testing on these samples and store coded genetic and medical information in a secure database.

If you are a parent or legal guardian of an infant who died suddenly with no apparent medical reason and would like to learn more about this study, please call 206-884-4102 or email brainresearch@seattlechildrens.org. We are deeply sorry for your loss.


American SIDS Institute

SIDS Research Guild

International Society for the Study and Prevention of Perinatal and Infant Death

American Association of SIDS Prevention Physicians